CEP (Congenital Erythropoietic Porphyria) is an extremely rare genetic disease that causes severe photosensitivity, blistering, scarring, and long-term damage to the skin and eyes. For people like Justin, CEP means living fully covered to survive the sun. It means adapting daily life, losing abilities over time, and facing a disease with no true treatment, only ways to manage the damage. Most people have never heard of CEP. This is why it matters 💜 Sharing Justin’s story is about visibility, un
0:31
CEP (Congenital Erythropoietic Porphyria) is an extremely rare ge…
428.7K views3 months ago
FacebookUnited Porphyrias Association
Recognize Acute Hepatic Porphyria (AHP)
Recognize Acute Hepatic Porphyria (AHP)
Sep 4, 2010
porphyria.com
Acute intermittent porphyria: Video, Causes, & Meaning | Osmosis
6:26
Acute intermittent porphyria: Video, Causes, & Meaning | Osmosis
Apr 16, 2019
osmosis.org
Porphyria - Dr. W. Jefferson MD | SGT
19:32
Porphyria - Dr. W. Jefferson MD | SGT
173 views2 months ago
YouTubeBiochemistry Made Easy
CPE in cats 🐈 #cat #animals #dog
0:11
CPE in cats 🐈 #cat #animals #dog
219 views4 weeks ago
YouTubeDr. Urvashi Songara
Most ICONIC Cats Getting Photographed (Part 2) 📸🐱
0:34
Most ICONIC Cats Getting Photographed (Part 2) 📸🐱
1.1M views1 week ago
YouTubeSpiderCat Ranks
United Porphyrias Association on Instagram: "@fidemiron was diagnosed with Congenital Erythropoietic Porphyria (CEP) as a baby. She grew up with open wounds, unbearable pain, and years of uncertainty — but also with an unbreakable spirit. Today, she leads the Spanish Porphyria Association, turning her pain into purpose and her voice into hope for others still fighting. As Fide says, “We are not numbers or isolated cases — we are people with dreams, families, and a deep will to live.” 💜 ✨
0:14
United Porphyrias Association on Instagram: "@fidemiron was diag…
345.9K views6 months ago
Instagramunitedporphyrias
2:53
Kris Kinar lived with Erythropoietic protoporphyria (EPP), a rare sun-s…
4K views2 months ago
TikTokcbcsasknews
9:26
Understanding Erythropoietic Protoporphyria Awareness
1.2K views3 months ago
TikTokchey_epp
1:00
Understanding Congenital Erythropoietic Porphyria (CEP)
33.1K views1 month ago
TikTokhamiltonfamily796
23:46
Porphyrias
403.6K viewsDec 5, 2019
YouTubeBiochemistry by Dr Rajesh Jambhulkar
1:51
Acute Intermittent Porphyria
21.1K viewsMay 8, 2017
YouTubeXpertDox
9:03
Hyperthyroidism in Cats
34.9K viewsJul 30, 2021
YouTubeDr. Lera @ Heron Lakes Animal Hospital
2:45
Hyperthyroidism in cats
80.9K viewsNov 21, 2013
YouTubeVet's Klinic
9:14
Ear Mites in Cats: Causes, Symptoms, & Treatment
179.4K viewsAug 26, 2021
YouTubeCats
4:08
Porphyria's Lover by Robert Browning
11K viewsSep 30, 2014
YouTubeKnutsford Academy
6:56
Porphyria Cutanea Tarda (PCT) | USMLE Step 1 Hematology Mnem…
35.2K viewsNov 1, 2018
YouTubePixorize
6:40
Hemostatic, Thrombolytic, Erythropoietic & Leukopoietic gro…
97.5K viewsNov 2, 2020
YouTubeLevel Up RN
19:20
Porphyria - Classification, Diagnosis, Treatment || Porphyria …
21.7K viewsJan 15, 2020
YouTubeBiochemistry Basics by Dr Amit
3:12
Ania (UK) - Living with Acute Intermittent Porphyria
23.5K viewsFeb 28, 2019
YouTubeAlnylam Pharmaceuticals
4:56
Megan - Living with acute hepatic porphyria (AHP)
15.6K viewsMar 10, 2020
YouTubeAlnylam Pharmaceuticals
1:18
Toddler suffers from rare, vampire-like symptoms
1.4M viewsMar 1, 2015
YouTubeUSA TODAY
15:06
Porphyria's Lover by Robert Browning Analysis
45K viewsAug 15, 2017
YouTubeMissHannaLovesGrammar
14:47
Acute Intermittent Porphyria (AIP) | In-depth Overview of Triggers, Sy…
51.1K viewsNov 10, 2019
YouTubeJJ Medicine
7:59
Feline Panleukopenia - causes, pathology, clinical signs, diagnosi…
30.1K viewsApr 24, 2021
YouTubeVet Skye
1:24
Acute Intermittent Porphyria - an Osmosis Preview
67.4K viewsFeb 12, 2021
YouTubeOsmosis from Elsevier
10:25
Porphyria Biochemistry | Explanation & Mnemonic | Heme S…
75.7K viewsDec 4, 2020
YouTubeAkshat Juneja
5:28
Toxoplasmosis: How Parasites in Your Cat Can Infect Your Brain
513.3K viewsAug 14, 2017
YouTubeSciShow Psych
9:33
Erythropoiesis:- Steps in RBC formation, Regulation of Erythrop…
75.7K viewsJun 20, 2021
YouTubeMed Today
2:58
Effects of erythropoietin on cycling performance of well-trained cyclists
135.5K viewsJul 17, 2017
YouTubeThe Lancet
See more videos
Static thumbnail place holder